Tuesday, 22 February 2011

day

This is a day in the life of doofas. If anybody does read this it won't be so interesting for you, its more for me so that I have a measure of my progress.
get up
watch TV/muck about on computer
breakfast
pilates
rest
shower
sit down
get dressed
wash up
read bible
do puzzler
walk
lunch
rest
watch neighbours
computer time or read
the husband home
chat
walk
make dinner
eat dinner
rest
TV/play game
bed
read
sleep

Tuesday, 15 February 2011

doctor

Yesterday saw us on another trip to the doctors. When I got married and moved I had to change doctors. I didn't really want to because I don't like doctors much (well going to the doctors, I guess doctors themselves are ok). I had just got used to the doctors I was at, and didn't like the thought of getting used to another one. However I'm really glad I did have to change, because our new doctor is fab. At my old doctors I would go to them, describe what was wrong, and they would diagnose and prescribe as appropriate. But it turned out that all of the things I was going to them with were all symptoms of CFS, but the doctor wasn't putting them all together. As soon as I went to the new doctors and he saw from the old ones all the things I had seen the doctor about recently he put it all together and diagnosed CFS. This meant that I could then access the CFS service in Derby, which has helped no end. He is also clued up about CFS and when I go and see him he knows if things I am going with are CFS related, or something else. However when we went to see him yesterday he upset me. It is probably a silly to get upset up, but he gave me a sick note for 6 weeks, not for 12 weeks as per usual. Now I think he did this because he can see that I am slowly getting better, and wanted to be able to reassess in six weeks time. However it upset me. I think it was because it felt like he thought I should be finding work. He has always been the person that has understood, that has known that not working is the best thing to do for me to re-cooperate. At no point did he say I should be working, just that he would write the note for 6 weeks, but it really got me down. I do want to be working, I truly do, but more than that I want to be well. And I don't want to work at the expense of my health. I also have no idea what work I could go into. I have no job to make a phased return into, and I can't just jump in the deep, I need it to be phased. Without the sick note I can't claim benefits. This is the only form of income I bring in. I know I don't work for it, but I can claim it because I did work and pay my taxes/NI. And so if I don't get it I bring no income in to the house. It kind of makes me feel like I am a bit useless. The husband doesn't mind this at all. He is much better at trusting God than I am, and trusting that he will provide for us. I need to learn from him. I have rambled a bit here, it probably makes no sense. But I needed to write and share.

Monday, 7 February 2011

hospital

I have had a couple of trips to the hospital during January. They were for an x-ray and an ultrasound. The doctor sent me for these because recently I have had an increased need to go for a wee. It was thought kidney stones could be the cause, hence the trips to the hospital. I saw my doctor on Friday for the results. turns out everything is clear, it is not kidney stones. I was a little bit disappointed about this - not because I want kidney stones but because it would give us an answer. The answer I got instead is that it is probably all just part of the CFS. The CFS is causing the nerve endings in my bladder to get a bit muddled and send full bladder messages to my brain when it is not full. Despite the dip I had in January I was thinking we were getting somewhere with beating this CFS, but having this new symptom makes me a bit cross coz it's not just hanging around its giving new challenges. I don't feel an overall down about it, I am still managing to be fairly positive overall. I just wish the CFS would get lost now!

Wednesday, 2 February 2011

positive

Today I am feeling a bit more positive than I sometimes do. There are some people that help me to feel positive. They are mostly the husband, the Blake-Lobbs, brother the younger and my cousins children. However today's good feelings came from none of them. I found them from somewhere within. It feels good.